All the good stuff,
in one place.
Research, real-people communities, podcasts, doctor lists. We did the doom-scrolling so you don't have to. 💛
Start here — the basics
Trustworthy 101s. Read these first if you're new.
Dysautonomia International
The mothership. Patient guides, doctor lists, research updates.
The Dysautonomia Project
Plain-English explainers + the patient/provider book.
Standing Up to POTS
Research, the POTScast podcast, youth & teen support.
NIH / NINDS POTS page
The official US gov rundown of POTS.
Cleveland Clinic — POTS
Symptoms, causes, treatment in human language.
Mayo Clinic — POTS overview
Diagnostics, what to expect at appointments.
Research & studies
The actual papers. Bookmark, send to your doctor, geek out.
PubMed — POTS literature
live feedLive feed of every peer-reviewed POTS paper.
AHA/ACC/HRS POTS Expert Consensus (2015)
The clinical playbook doctors actually use.
Long COVID & POTS (Nature, 2022)
Why so many people developed POTS post-COVID.
Vanderbilt Autonomic Dysfunction Center
One of the leading research labs. Open studies + papers.
Bateman Horne Center
Research + clinical care for POTS, ME/CFS, Long COVID.
RECOVER Initiative (NIH)
The big NIH Long COVID study — POTS is a major focus.
Communities & real people
Where the spoonies hang out. You'll feel less alone within 5 minutes.
r/POTS
Reddit70k+ members. Memes, vents, advice, wins. Very active.
r/dysautonomia
RedditBroader umbrella. Great for newly diagnosed.
#POTS on TikTok
TikTokSymptom checks, day-in-the-life, salty drink recipes.
#POTSie on Instagram
IGAesthetic chronic illness content + creators to follow.
Dysautonomia Support Network
Peer support, local meetups, mentorship program.
The Mighty — POTS stories
First-person essays from the community.
Discord: Dysautonomia Hangout
DiscordChill voice/text servers — search 'dysautonomia' on Disboard.
Listen / watch
For the days standing up is too much.
Find a specialist
Doctors who actually get it.
Know a great resource we missed?
This page grows with the community. Send us anything that helped you.
Send us a linkAwareness, not medical advice. Always loop in a real provider for the real stuff.